Rare Diseases in the Age of Health 2.0

Nonfiction, Science & Nature, Technology, Engineering, Business & Finance, Economics, Health & Well Being, Medical
Cover of the book Rare Diseases in the Age of Health 2.0 by , Springer Berlin Heidelberg
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Author: ISBN: 9783642386435
Publisher: Springer Berlin Heidelberg Publication: October 21, 2013
Imprint: Springer Language: English
Author:
ISBN: 9783642386435
Publisher: Springer Berlin Heidelberg
Publication: October 21, 2013
Imprint: Springer
Language: English

This text focuses on various factors associated with orphan diseases and the influence and role of health information technologies. Orphan diseases have not been adopted by the pharmaceutical industry because they provide little financial incentive to treat or prevent it. It is estimated that 6,000-7,000 orphan diseases exist today; as medical knowledge continues to expand, this number is likely to become much greater. The book highlights the opportunities and challenges in this increasingly important area. The book explores new avenues which are opened by information technologies and Health 2.0, and highlights also economic opportunities of orphan disease medicine. The editors of this new book have international experience and competencies in the key areas of patient empowerment, healthcare and clinical knowledge management, healthcare inequalities and disparities, rare diseases and patient advocacy.

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This text focuses on various factors associated with orphan diseases and the influence and role of health information technologies. Orphan diseases have not been adopted by the pharmaceutical industry because they provide little financial incentive to treat or prevent it. It is estimated that 6,000-7,000 orphan diseases exist today; as medical knowledge continues to expand, this number is likely to become much greater. The book highlights the opportunities and challenges in this increasingly important area. The book explores new avenues which are opened by information technologies and Health 2.0, and highlights also economic opportunities of orphan disease medicine. The editors of this new book have international experience and competencies in the key areas of patient empowerment, healthcare and clinical knowledge management, healthcare inequalities and disparities, rare diseases and patient advocacy.

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