Helping Your NF1 Child: A Parent's Guide To Neurofibromatosis

NF1 parents may feel that the genetic nature of the disease means that little can be done for their children. But the diagnosis of NF1 tells us very little about what to expect.

In this short, simple book, Dr. Maloney explains why NF1 varies so widely in how it affects children. For the parents of NF1 children or newly diagnosed adults, Dr. Maloney covers the genetics of NF1 simply. He shows why the disease cannot by predicted by NF1 alone and gives cutting edge research possibilities for its treatment.

Adults living with NF1 may be concerned about passing on their symptoms to their children. Dr. Maloney gives a clearer view of the non-genetic aspects of NF1, those that really determine how well or poorly your child will do going forward. He breaks down the different major deficiencies with a focus on learning issues. For those who think that NF1 is simply a disease, Dr. Maloney takes the view that it is an essential part of the evolutionary process. Our children may be slightly more evolved to deal with a high-stress world full of distractions.