Rare Diseases Epidemiology: Update and Overview

Nonfiction, Health & Well Being, Medical, Specialties, Preventive Medicine, Medical Science, Genetics
Cover of the book Rare Diseases Epidemiology: Update and Overview by , Springer International Publishing
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Author: ISBN: 9783319671444
Publisher: Springer International Publishing Publication: December 6, 2017
Imprint: Springer Language: English
Author:
ISBN: 9783319671444
Publisher: Springer International Publishing
Publication: December 6, 2017
Imprint: Springer
Language: English

The fields of rare diseases research and orphan products development continue to expand with more products in research and development status. In recent years, the role of the patient advocacy groups has evolved into a research partner with the academic research community and the bio-pharmaceutical industry. Unique approaches to research and development require epidemiological data not previously available to assist in protocol study design and patient recruitment for clinical trials required by regulatory agencies prior to approval for access by patents and practicing physicians.

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The fields of rare diseases research and orphan products development continue to expand with more products in research and development status. In recent years, the role of the patient advocacy groups has evolved into a research partner with the academic research community and the bio-pharmaceutical industry. Unique approaches to research and development require epidemiological data not previously available to assist in protocol study design and patient recruitment for clinical trials required by regulatory agencies prior to approval for access by patents and practicing physicians.

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