Moonrise

One Family, Genetic Identity, and Muscular Dystrophy

Nonfiction, Family & Relationships, Parenting, Special Needs, Biography & Memoir
Cover of the book Moonrise by Penny Wolfson, St. Martin's Press
View on Amazon View on AbeBooks View on Kobo View on B.Depository View on eBay View on Walmart
Author: Penny Wolfson ISBN: 9781466868830
Publisher: St. Martin's Press Publication: April 22, 2014
Imprint: St. Martin's Press Language: English
Author: Penny Wolfson
ISBN: 9781466868830
Publisher: St. Martin's Press
Publication: April 22, 2014
Imprint: St. Martin's Press
Language: English

Moonrise is Penny Wolfson's first-person account of her family, her son Ansel, and his progressive disability, caused by the genetic disease Duchenne muscular dystrophy. The journey begins when he is born and deemed a particularly beautiful and magical baby, continues with the alarming possibility, at the age of two, of "wrongness," takes us through the diagnosis of disease and prognosis of early death, and brings us to his adolescence, where his parents are never sure if the moon is rising or setting over his life.

As she traces her son's development and the impact of his disability on her worldview, she embarks on a quest to understand scientific advances and their implications. (The gene was isolated at approximately the time Ansel was diagnosed.) She also explores special education, giftedness, prenatal testing, and the genetic links she shares with her mother, sisters, and son. Questions about the disease-causing mutation persist: What does knowledge of the self on a molecular level mean? Is genetic self-knowledge our goal now, much as knowledge of the psyche was in the last century? Moonrise is an essential contribution to the dialogue about genetics, as well as a deeply human story about a remarkable child and his family.

View on Amazon View on AbeBooks View on Kobo View on B.Depository View on eBay View on Walmart

Moonrise is Penny Wolfson's first-person account of her family, her son Ansel, and his progressive disability, caused by the genetic disease Duchenne muscular dystrophy. The journey begins when he is born and deemed a particularly beautiful and magical baby, continues with the alarming possibility, at the age of two, of "wrongness," takes us through the diagnosis of disease and prognosis of early death, and brings us to his adolescence, where his parents are never sure if the moon is rising or setting over his life.

As she traces her son's development and the impact of his disability on her worldview, she embarks on a quest to understand scientific advances and their implications. (The gene was isolated at approximately the time Ansel was diagnosed.) She also explores special education, giftedness, prenatal testing, and the genetic links she shares with her mother, sisters, and son. Questions about the disease-causing mutation persist: What does knowledge of the self on a molecular level mean? Is genetic self-knowledge our goal now, much as knowledge of the psyche was in the last century? Moonrise is an essential contribution to the dialogue about genetics, as well as a deeply human story about a remarkable child and his family.

More books from St. Martin's Press

Cover of the book Bill W. by Penny Wolfson
Cover of the book Rendezvous at Kamakura Inn by Penny Wolfson
Cover of the book Bone Gods by Penny Wolfson
Cover of the book Until Proven Innocent by Penny Wolfson
Cover of the book Thrones, Dominations by Penny Wolfson
Cover of the book Allison Hewitt Is Trapped by Penny Wolfson
Cover of the book Reluctant Hearts: Until We Break and Until It's Right by Penny Wolfson
Cover of the book Heaven by Penny Wolfson
Cover of the book The Bird Flu Pandemic by Penny Wolfson
Cover of the book Murder Suicide by Penny Wolfson
Cover of the book Last Whisper by Penny Wolfson
Cover of the book Web of Deceit by Penny Wolfson
Cover of the book Pu Pu Hot Pot by Penny Wolfson
Cover of the book The Right Kind of Rogue by Penny Wolfson
Cover of the book Broken Rebel by Penny Wolfson
We use our own "cookies" and third party cookies to improve services and to see statistical information. By using this website, you agree to our Privacy Policy