A Long Walk In The Garden: Living With Rett Syndrome

Nonfiction, Family & Relationships, Parenting
Cover of the book A Long Walk In The Garden: Living With Rett Syndrome by Cindy Fourie, Cindy Fourie
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Author: Cindy Fourie ISBN: 9780620723749
Publisher: Cindy Fourie Publication: November 3, 2016
Imprint: Smashwords Edition Language: English
Author: Cindy Fourie
ISBN: 9780620723749
Publisher: Cindy Fourie
Publication: November 3, 2016
Imprint: Smashwords Edition
Language: English

I can’t say exactly when I felt the change, but the doctors say it definitely was between 18 months and two years of age. Mom used to give me chips in a bowl and my favourite trick was to tip the bowl over and eat the chips off the carpet. Looking back, how unhygienic! On one particular occasion, Mom gave me my bowl of chips and I was planning to do the same when all of a sudden my hands didn’t want to respond to my thought pattern. I thought, “Maybe I am not concentrating.” So I put my mind to it and tried again. Nothing. What is wrong? I could see on Mom’s face that she thought I was just being naughty. It could be that I was just having a bad day. Tomorrow would be better. Tomorrow was not better; in fact, it was worse.
Excerpt from book
“As parents of a Rett Syndrome daughter, we have learnt the truth of the scripture found in Romans 8vs28. God is able and does bring good out of any situation as long as we keep our focus on the Lord Jesus Christ. God does not always remove difficult situations, but rather enables us to go through them.”
Robert and Cindy Fourie
“This is a wonderful story with humour and love in all the sadness.”
Susan van Tonder (Editor)

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I can’t say exactly when I felt the change, but the doctors say it definitely was between 18 months and two years of age. Mom used to give me chips in a bowl and my favourite trick was to tip the bowl over and eat the chips off the carpet. Looking back, how unhygienic! On one particular occasion, Mom gave me my bowl of chips and I was planning to do the same when all of a sudden my hands didn’t want to respond to my thought pattern. I thought, “Maybe I am not concentrating.” So I put my mind to it and tried again. Nothing. What is wrong? I could see on Mom’s face that she thought I was just being naughty. It could be that I was just having a bad day. Tomorrow would be better. Tomorrow was not better; in fact, it was worse.
Excerpt from book
“As parents of a Rett Syndrome daughter, we have learnt the truth of the scripture found in Romans 8vs28. God is able and does bring good out of any situation as long as we keep our focus on the Lord Jesus Christ. God does not always remove difficult situations, but rather enables us to go through them.”
Robert and Cindy Fourie
“This is a wonderful story with humour and love in all the sadness.”
Susan van Tonder (Editor)

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